When I started writing this blog post I had terrible problems with the editing. It was incredibly frustrating. I asked on Twitter if anyone else was having problems and it seemed I was alone. Thankfully the problem seems to have resolved itself now. That’s the first good news story.
We waited ages for the results of my son’s bone marrow testing and news of the next stage of treatment. Obviously we wanted his team to make sure they got things right, but our worry is what is the Leukaemia doing while we wait? If we had no previous experience of childhood cancer then we probably wouldn’t be so concerned. Dealing with sarcoma was different as there was a growing tumour that needed shrinking and, in the case of the Osteosarcoma, removing. There was always that sense of urgency. Leukaemia is cancer of the blood so there is no tumour to locate and destroy. Instead, the destruction has to happen in the bone marrow where new blood is created. The chemotherapy my son had during his first cycle was very strong indeed. His blood counts are taking a long time to recover, but slowly they are coming up again, thank goodness!
Anyway, the decision is that the team feel that more chemo is just too risky, as it made him so unwell before, so there will now be a pause in his treatment. This will allow him to celebrate his birthday and Christmas out of hospital before getting prepared for his stem cell transplant. A little bit of good news then, as I was so sure that he was going to be enduring more chemo over the festive season.
I would love to hear if you have any good news for Christmas – let me know in the comments below!